The Sturge-Weber Foundation

The Sturge-Weber Foundation provides support and services for individuals with Sturge-Weber syndrome, Port Wine Stain Birthmarks, and Klippel-Trenaunay syndrome.

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Online Since
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STURGE-WEBER.ORG HISTORY

This website sturge-weber.org was created on September 14, 2006. It is now nine hundred and twenty weeks, eighteen days, seven hours, and twelve minutes old.
REGISTERED
September
2006

COMPANY AGE

17
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7
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Music and jewelry for a cure for sturge weber syndrome. Until the end of June 2018, we will donate all profit from sales of original music. On this site to support research on sturge-weber syndrome, a rare and serious condition that can cause seizures and developmental problems in children and adults. Research published this year gives hope that a cure might be possible. Please follow this link for more information.

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Thursday, January 12, 2017. Praying that I can make it out of my neighborhood this morning and into work to try to get caught up! Please let it stop and warm up soon! Late starts are fun in moderation mother nature. Amanda stressed out 3rd grade teacher. Saturday, December 17, 2016. Gone by in a FLASH. How did 2016 go by so quickly and without me posting on the blog like I intended? What I learned is early fall marathons are easier for me to train for then late fall races.

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CONTACTS

The Sturge-Weber Foundation

The Sturge-Weber Foundation

1240 Sussex Turnpike

Randolph, NJ, 07869

US

STURGE-WEBER.ORG HOST

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PAGE TITLE

The Sturge-Weber Foundation

DESCRIPTION

The Sturge-Weber Foundation provides support and services for individuals with Sturge-Weber syndrome, Port Wine Stain Birthmarks, and Klippel-Trenaunay syndrome.

CONTENT

This website sturge-weber.org states the following, "Board of Directors and Medical Advisory Board." We viewed that the website said " Key Staff and Contact Information." It also said " TEAMSWF Route to a Cure. Share Your Story of Hope. SWS International Registry Did you Register? 2015 TEAMSWF - Join in the fun in your local area! In the News Stay informed! SWS Centers of Excellence. clinical care with experts who care! Join our mailing lists. The Sturge-Weber Foundation PO Box 418 Mt. Freedom, NJ 07970-0418 USA Phone 973-895-4445 or 800-627-5482." The header had sturge-weber as the highest ranking search term. It is followed by sturge weber, sturge-weber syndrome, and sturge weber syndrome which isn't as ranked as highly as sturge-weber. The next words they used was port wine stain. birthmark was included but will not be viewed by web crawlers.

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